Hospital Bed to Daybed

 MEET JAMISON ROSE

The friendliest, most loving and full-of-life 6 year old. She is delightful, social, outgoing – with a smile that melts hearts.

When Jami was born no one knew that she had Cockayne Syndrome.  A rare genetic disorder characterized by poor growth, microcephaly,  progeria (premature aging), sensitivity to sunlight, moderate to profound developmental and neurological delays and a shortened lifespan. Learn More.

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There is NO CURE, NO TREATMENTS & is 100% TERMINAL

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